Charity

Ice Bucket Craziness Changes Charity Forever

The ALS ice bucket challenge is bigger than Kickstarter. It’s bigger than Jesus plus Kanye plus baby North West multiplied by the sum of Brangelina and Warren Buffet. I mean, did you watch former Leader of the Free World and amateur painter George W. Bush’s video? This shit has gotten real:

The ALS Association received $8.6 million in donations Tuesday as proceeds from the ice bucket challenge continued to pour in at record rates. The association has begun posting daily tallies from the fundraiser on its website, stating on Wednesday that since July 29 it had raised $31.5 million. That’s an $8.6 million jump over the previous day’s tally, and more than 16 times the amount it had received over the same period last year.

“Increased awareness and unprecedented financial support will enable us to think outside the box,” the ALS Association said in a statement. Celebrities, athletes and politicians ranging from the Foo Fighters’ Dave Grohl to former President George W. Bush have taken the challenge, pouring buckets of ice water over their heads to raise ALS awareness.

So yeah, some people have raised objections about priorities and stuff, including the thoughtful Jia Tolentino, but they’re missing one key point. When you’re burnt out from a summer of Gaza, Ferguson, ISIS, ebola epidemics, and Taylor Swift, it can feel restorative to dump a bucket of ice on your head and/or watch someone else do it. For a good cause, of course.

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Concerning the Moral Obligations of the Wealthy

I have come under some criticism of late for being uncharitable toward the rich. To be more precise, I offhandedly wrote, alluding to Ester’s piece on trust fund kids, that my policy concerning people born rich is to distrust them. Commenters took me to task for that, and rightly so: it is foolish and wrong to suppose that affluence, in and of itself, defines character. As one commenter noted, mine was “exactly the kind of ignorance several writers on the Billfold would preach against if it were any other kind of discrimination.”

I think that commenter was right, and I said so in comments and a note appended to the post in question. I also said, “We could have a separate discussion about whether there is any moral imperative on the inheritors of wealth to do something selfless and worthwhile with their money, or about the attitudes that may or may not prevail among them about whether they deserve their good fortune.” Several commenters later suggested that yes, that is a discussion worth having. This came to mind over the weekend, when I was engaged in that most proletarian of leisure activities, camping and reading the New Yorker. So let’s start our discussion about the moral obligations of the wealthy with a focus on how they help people with acute need.

I suppose I should not expect a worldview untouched by a certain elitism when I read the New Yorker, but more and more, I notice that there is an archetypal story about rare diseases and how progress is made in their cures. It goes like this:

1. An upper-middle-class couple notices something unusual about their infant child. 2. Doctors are either flummoxed and unhelpful or convinced that it is a terminal illness. 3. The parents refuse to accept the doctors’ assessment and devote large sums of money to (a) organizing and lobbying for more research on the illness; and (b) making all kinds of costly changes to their home, lives, and routines to accommodate their ill child and make the child’s life more enriching. 4. Progress in treatment results from the parents’ tireless efforts.

This sequence became clear to me while reading Seth Mnookin’s piece, “One of a Kind” in the July 21, 2014, issue. The article focuses on a couple, a college professor and an M.B.A., whose son has an extraordinarily rare genetic disease, and their ultimately successful quest to push the medical establishment toward more data-sharing and collaboration to develop treatments. (Spoiler: the disease isn’t quite as rare as previously believed.) The article is great and fascinating: in addition to following a family with the surname Might and involving a glycobiologist who is actually named Hudson Freeze, it illustrates how more base human motivations (researchers’ desire for sole credit on publications; institutions’ need to compete for scarce funding) can impede medical progress. It also has a happy-ish ending: the Mights’ son is showing surprising progress as he gets older; research is progressing.

But all that progress is predicated on the fact that this terrible disease befell not just Matt and Cristina Might’s child, but the child of Matt and Kristen Wilsey as well. The Wilseys, we learn, “are one of the most prominent families in San Francisco.”

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WWYD: Prudie & The Ethicist Edition

Wouldn’t Prudie and the Ethicist be a good name for a band? Anyway. Someone wrote a letter to Slate’s Dear Prudence with a question that they should have pointed our way:

My good friend has found her mate after several failed relationships and is desperate to be married and start her family (tick tock). I am thrilled that she is engaged, and she has asked me to be in the wedding. I would normally be pleased to do so, except for one issue. She has debt of approximately $250,000 in credit cards and student loans, and she has not told her fiancé about this. I feel strongly that she is morally and ethically required to tell him before they are married, but she refuses. I can’t help but feel like an accomplice to her dishonesty by standing up in the wedding. What is the right thing to do? —Silent Accomplice

Prudie tells SA that she’s right to be squicked out: her “good” friend is perpetrating a fraud.

debt like this is something that simply must be revealed before two people wed. Keeping from your intended painful news, like a diagnosis of major illness, a previous incarceration, or the fact that you are dead broke (and not Hillary Clinton dead broke), means starting a life together based on an implicit lie.

Startlingly, Prudie does not suggest that SA write the clueless fiance an anonymous letter suggesting he follow the money. I wish we knew whether the bride were hiding financial truths from the groom or straight out lying. Either way, marriages have been based on deceit since the beginning of time. Years shaved off of ages, ex-wives forgotten, goats gone unaccounted for, paternity fudged. This can be seen as just another strike against the Wedding Industrial Complex, the societal idiocy that drives us to get married at all costs, often literally. Audits and prenups for all! Or don’t get married. That’s cool too.

Meanwhile, at the Ethicist’s lair …

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CEO Wins Chance to get Killed By George RR Martin

In a perfect confluence of events, a wolf-loving Michigan CEO has won the right to be killed off by renowned wolf-aggrandizing author George R.R. Martin. Responding to a competitive fundraising call, Dr. Dave Cotton’s family made a $20,000 donation to a wolf-related charity in his honor — for father’s day. (Aww!)

Mike Cotton, chief operating officer of Meridian Health Plan and one of Dr. Cotton’s three sons, said his father had an affinity for wolves before he started reading Martin’s fantasy series, “A Song of Fire and Ice,” which was first published in 1996.

“We saw this crowdfunding come up online and we thought it would be perfect for his love of wolves,” Mike Cotton told ABC News. Mike’s brother, Sean, who is an administrative officer at the family-operated company, said their father loves the books and watches the HBO series “avidly.”

“He’s always referred to himself as a lone wolf,” he said of his father.

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The Tricky Business of Criticizing Big Philanthropy

Dissent has published a smart primer by Joanne Barkan on “how to effectively criticize big philanthropy.” The piece uses education reform as a way to talk about how unregulated mega-foundations can exert influence on policy outside of the democratic process. Barkan talks us through a few common “challenges” you might hear when, say, you have a little too much wine at a dinner party and decide it’s time to be that guy.

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TOMS Gets Into the Coffee Business

TOMS founder Blake Mycoskie took to the stage at South by Southwest to announce that he’s opening a coffee business. From Forbes.

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Who Benefits from “12 Years A Slave’s” Oscar Bump?

The Academy Awards are a meaningless popularity contest decided by out-of-touch old white men in suits with the help of an occasional white lady. But if your movie wins one, an Oscar can help make a significant difference in how posterity treats it and, more immediately, in how much money it makes. 12 Years a Slave, which raked in a very respectful $140,000,000 worldwide before it won Best Picture, Best Supporting Actress, and Best Adapted Screenplay, is beginning to enjoy its Oscar bump–or perhaps, bumps:

12 Years will make a major expansion in U.S. theaters — Fox Searchlight will be playing the movie in more than 1,000 theaters — even though the slavery drama comes out on DVD Tuesday. … Beyond the big screen, best picture winner 12 Years a Slave is getting a post-Oscar bump for the book it was based on. The 19th-century memoir by ex-slave Solomon Northup jumped from No. 326 on Amazon.com before Sunday night’s Academy Awards ceremony to No. 19 on Monday afternoon.

According to the New York Times, the movie launched its source material to the bestseller lists this past fall. Now its trajectory is steep enough that Oscar-winning director Alfonso (“Gravity”) Cuaron could be called in to film it. When your intrepid author checked on Tuesday, March 4, the paperback remained in the top 20, while the Kindle version had jumped to #17 overall and #2 on several specific lists:

• #2 in Books > Politics & Social Sciences > Sociology > Race Relations • #2 in Kindle Store > Kindle eBooks > History > Americas > United States • #2 in Kindle Store > Kindle eBooks > Nonfiction

People are rediscovering a lost classic and paying for the privilege! Terrific. But in a case like that of 12 Years a Slave, when the memoirist is long-since deceased, who profits from the book’s Oscar bump? Not to be all Upworthy about it, but the answer may surprise you.

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After 12 Years of Sponsoring a Haitian Child, What Kind of Difference Do You Make?

Jonah Ogles spent 12 years sponsoring a kid in Haiti named Ervenson through a Christian organization called Compassion International. He sent $35 a month, or a total of $5,000, which went towards paying for things like food, health care, books, supplies, and tuition at Christian schools. Jonah flew to Haiti to meet Ervenson, and because he was curious how much a difference his sponsorship made in Ervenson’s life. He wrote about his experience for Outside magazine.

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Volunteering Doesn’t Need to Be a Drag — Ask Me How

Volunteerism: A primer for success

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The Wealth We Have to Give

That’s Casey Cep on giving to charity, who argues that it’s easy to rage against the one percent and equally as easy to forget that their greed is just a magnification of our own—that the rich can afford to do more with their billions, but that some of us could probably afford to do a little more too (and yes, some of us truly can’t afford to give more, and that’s fair). Basically, we’re all on this together.

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